Comments on: Eight Stories of Locked-In Syndrome

By: carol

carol — Wed, 23 Sep 2009 01:30:04 +0000

brother had locked in syndrome,but somehow came back he walks,talks and eats alot . keep workin at it even when people tell you there is no hope because there is.

By: JJ

JJ — Sat, 07 Mar 2009 21:13:00 +0000

A very dear friend just suffered a brain stem stroke and was diagnosed with this syndrome. Thank you very much for this most informative post.

By: CK

CK — Wed, 15 Oct 2008 17:53:00 +0000

weeble – I think her eyes are closed, like she’s straining…

By: Laura

Laura — Fri, 10 Oct 2008 04:49:00 +0000

This is absolutely devestating. I’m so upset for these people and their families. I really want to read The Diving Bell and the Butterfly now, too.

By: cigno

cigno — Fri, 10 Oct 2008 03:08:00 +0000

@PartiallyDeflected:

While the Terry Schiavo case was indeed a sad tale, it was later found in her autopsy that she HAD suffered severe brain damage. From her Wikipedia page: “Examination of Schiavo’s nervous system by neuropathologist Stephen J. Nelson, M.D., revealed extensive injury. The brain itself weighed only 615 g, only half the weight expected for a female of her age, height, and weight, an effect caused by the loss of a massive amount of neurons. Microscopic examination revealed extensive damage to nearly all brain regions, including the cerebral cortex, the thalami, the basal ganglia, the hippocampus, the cerebellum, and the midbrain.”

By: Jenny M

Jenny M — Fri, 10 Oct 2008 02:20:00 +0000

Hiccups = brain tumor? Oh crap, I’m in trouble.

But in other news, the movie The Diving Bell and the Butterfly is marvelous and beautiful. Anyone out there who hasn’t seen it: rent it. It’s breathtaking.

By: PartiallyDeflected

PartiallyDeflected — Fri, 10 Oct 2008 00:38:00 +0000

Kind of reminds me of the Terry Schiavo case from a few years ago. The husband (who already had a new girlfriend) said she was brain dead, while her parents insisted that she was alive beause she could follow objects with her eyes.

By: Karen

Karen — Thu, 09 Oct 2008 21:58:00 +0000

Oh my. The timing of this is unreal for me. My husband’s friend died of ALS this morning. Fortunately, he had a wonderfully supporting family and the means to aquire some of this technology. He was able to communicate for much longer than otherwise would have been expected. He used this time to working tirelessly to raise money for his cause. He will be missed by a great many people.

By: GTT

GTT — Thu, 09 Oct 2008 21:41:00 +0000

Oh my god… My palms are sweaty and I´m having palpitations from reading this article. OH MY GOD! I just got the hiccups!! I´m going to go curl up on the floor beneath my desk now…

By: weeble warble

weeble warble — Thu, 09 Oct 2008 20:54:00 +0000

in julia tavalaro’s picture, where did her eyes go? pretty creepy.