Comments on: Eight Stories of Locked-In Syndrome

By: Leslie

Leslie — Mon, 23 Jan 2012 17:01:28 +0000

It’s strange that in a lot of these cases, all muscles are unable to move except for the eyes. Hmmmmm.

By: Heather

Heather — Mon, 23 Jan 2012 16:23:58 +0000

This is sooo scary. I agree with Mr. Chishome–I would never wish this on my worst enemy. Super scary. I knew someone who died of ALS, and it scared the daylights out of me… they thought his might be due to a surgery he had, although I’m not sure how true that is. Anyway, I’m been petrified to have surgery ever since… worked myself into a panic attack when I had to have my gallbladder removed…

By: evets32

evets32 — Mon, 23 Jan 2012 12:21:13 +0000

Watching The Diving Bell and the Butterfly, I couldn’t help thinking Morse Code would have been much faster than reciting the alphabet and waiting to blink until she got to the right letter.

By: runmadkate

runmadkate — Sun, 22 Aug 2010 08:50:56 +0000

i have locke in syndrome, but i have regained my limbs after total paralysis for months. blood clot on my brain stem. keep proving em wrong! story from hospital of HOPE. kate

By: runmadkate

runmadkate — Sun, 22 Aug 2010 08:47:36 +0000

read my story of a major stroke from hospital. giving families hope! kate

By: carol

carol — Wed, 23 Sep 2009 01:30:04 +0000

brother had locked in syndrome,but somehow came back he walks,talks and eats alot . keep workin at it even when people tell you there is no hope because there is.

By: JJ

JJ — Sat, 07 Mar 2009 21:13:00 +0000

A very dear friend just suffered a brain stem stroke and was diagnosed with this syndrome. Thank you very much for this most informative post.

By: CK

CK — Wed, 15 Oct 2008 17:53:00 +0000

weeble – I think her eyes are closed, like she’s straining…

By: Laura

Laura — Fri, 10 Oct 2008 04:49:00 +0000

This is absolutely devestating. I’m so upset for these people and their families. I really want to read The Diving Bell and the Butterfly now, too.

By: cigno

cigno — Fri, 10 Oct 2008 03:08:00 +0000

@PartiallyDeflected:

While the Terry Schiavo case was indeed a sad tale, it was later found in her autopsy that she HAD suffered severe brain damage. From her Wikipedia page: “Examination of Schiavoâ€™s nervous system by neuropathologist Stephen J. Nelson, M.D., revealed extensive injury. The brain itself weighed only 615 g, only half the weight expected for a female of her age, height, and weight, an effect caused by the loss of a massive amount of neurons. Microscopic examination revealed extensive damage to nearly all brain regions, including the cerebral cortex, the thalami, the basal ganglia, the hippocampus, the cerebellum, and the midbrain.”